Naomi - 5th grader

Naomi's 5th grade photos:

Jeremiah & Naomi

This is Naomi's first post

Hi everyone! I'm feeling great, things are funny: I'm in 5th grade now.  My life is good.  I'm about to turn 10 - double digit - and I hope there's gonna be a good party!

Good day!

- Naomi

Happy 9th birthday, Naomi!

Today is my Naomi's 9th birthday.  I will never forget how blessed we are to have her.  So many children with Leukemia don't survive.  I cherish every moment.  On her behalf, I encourage you do make a donation to the Leukemia Research Foundation

Naomi continues to be healthy, happy, strong and defy the odds.  Her hair is insanely long, she's become quite a comedian, pianist, singer, athlete and dancer.  She has many friends, is having some trouble in school (possibly a side effect of the chemotherapy - we're working on that), and is as sweet and kind as ever.

Happy birthday Naomi!!!

Happy birthday Naomi!

Naomi is 8 years old today! The toughest little girl in the world! She's a warrior princess, and 5 years after some of the worst news anyone could hear about a child ("SHE HAS LEUKEMIA"), she's a SURVIVOR and sparkling in the world like the angel she is. Of course, she has the support of her super awesome big brother helping her shine : > I love my babiez!!

Disney World via Make-A-Wish

Last week, Naomi received her wish from Make-A-Wish Foundation to visit Disney World! As a survivor of Leukemia, it was suggested that she wait at least a year beyond being in remission before enjoying her wish so that she could have an optimal experience.

Once the plane landed in Florida, Naomi came skipping down the exit hallway at the airport with a huge grin,

ready to start her adventure.

We left the airport, drove a short distance and checked into the Give Kids the World Village, a magical resort built specifically for children who are or have been dealing with a debilitating disease or health condition. Everything about the village is stunning, from the playful colors on the Wonderland-esque buildings, to the genuine kindness, patience and love displayed by the staff and countless volunteers from around the world. The children were in awe, as were we adults. It's built so that the children who are too sick to enjoy the theme parks can still have a great time. Read all about GKTW on their website.

Photos from the village:

Saturday night was orientation for the parents, and a party for the kids: hula hoops, dancing to music kids like, bowling games, jump ropes, etc. Naomi's mom, Nina, came back from orientation in a daze, utterly overwhelmed with amazement. We did our best to go to bed early despite the excitement, because the days ahead were going to be packed full of fun!

Sunday - Universal Studios. We arrived at the park just before noon (so much for trying to get there early - have you ever tried wrangling 8 people into being out the door early?? Sigh...) Naomi's grandmother had a couple of falls recently, and had to use a wheelchair, but thanks to our being escorted to the FRONT of every line for rides, shows, character photos, etc., she had a great time along with the rest of us. Naomi's brother, Jeremiah, is a ride fanatic. The faster, the more G-forces, the better! We managed to hit almost every ride in BOTH parks and wore ourselves fully out. However, the buzz was strong enough that we stayed up far too late Sunday night. Before falling asleep I noticed that Naomi's face was hot. Uh-oh...Yep. Fever. We gave her some tylenol to cut the fever and prayed for the best. By morning, Naomi said she felt better, so we went forward with our plans.

Monday - Disney Animal Kingdom. This particular Disney park didn't offer an escort to the front of the line, but we were allowed to enter the Fast Pass lanes, which made the wait significantly less than other folks standing in the regular lines, but slowed down our pace enough that we could only see this one park. But we had a blast! We did a safari, rode several rides, and the kids were invited to dance with the cast in the Lion King performance.

We had planned to head back to the village for dinner (3 meals per day per person are provided at the village - gratis), take a nap and then head back to the Magic Kingdom. I've always heard that it's amazing at night. But alas, Naomi was feeling terrible. Nina took her to the clinic and the diagnosis came back: strep throat! That meant that Naomi had to stay in bed all day on Tuesday. Since the fatigue had hit my mother particularly hard (the long flight, sitting all day in a wheel chair, etc.), it was decided that she'd stay at the villa with Naomi while the rest of us went to Disney Hollywood and Epcot. It was fun, but we missed Naomi and mom...

I'm so grateful for the opportunity to witness Naomi's joy in meeting her most beloved characters, being escorted to the front of every line for rides, participating in a theatrical presentation of the Lion King and just having a grand time. I'll never forget the smiles on the kids faces. Magical...

A Miracle at Disneyland

Naomi enjoyed a fun and full weekend! My sister, in her ingenuity, structured a plan to get 3 foster children (our little "sisters"), herself, her children and our mother a much needed mini-vacation. Given economic realities, in order to fund the trip, nothing short of a miracle was needed. Well, as we all know through Naomi's amazing healing journey, miracles do happen, and apparently in abundance. Thanks to an angel (who wishes to remain anonymous), not only was everyone able to travel to Los Angeles safely, but everyone attended Stevie Wonder's House Full of Toys Concert (the kids were especially excited to see the Jonas Brothers), and then the next morning visit Disneyland (the first time for the foster girls). A series of events led to serendipity of the highest order, and it was a beautiful weekend. Check out these happy faces:

Naomi feels better